Birthday parties are awesome, they are so much fun for kids. A time to play, eat, dance, socialize, and celebrate. We were invited to a friend of Henry's birthday party and the invitation was graciously extended to Ava and Ella as well.
We knew there would be a moon-bounce at this party. We knew that Ava and Henry would absolutely love playing in it, as most kids do. We also knew that Ella would most likely want to join in the fun. If SMA had its way, she would not be able to enjoy the jumping fun that every child in the room was enjoying. If SMA had its way, she would sit on the sidelines with wide eyes, wishing she could join the others. If SMA had its way she would be idle as the children she looked upon felt the exhilaration of bouncing, flipping, and soaring through the air. If SMA had its way, she would not be able to enjoy the simple pleasure of childhood.
She was persistent in her desire to go into the moon-bounce. Lindsay and I didn't have to think about it too much in terms of letting her go...we did have to think about how to best hold her so as to give her the best experience she could have. SMA wasn't going to take this away from her.
I was the first one to go with her into the bouncy-heaven. Needless to say, it took considerable effort to hold my own in the "arena" and even more so to keep her body in a comfortable and safe position. We experimented quickly with a few different positions and quickly found a comfort zone.
Her smile was priceless. Her excitement was contagious.
We bounced together. We sat and felt our bodies rocking to the beat of those around us. She got to feel the anti-gravity that so often eludes her.
After a break it was Lindsay's turn to enter the childhood pleasures with Ella. They laughed and played. They forgot for a moment the awful disease that afflicts Ella. They enjoyed the moment for what it was...a childhood moment.
If SMA had its way then Ella would not experience much of the world. Through her determination, her will, and her love of what life does have to offer, she defies SMA every chance she gets.
Take that SMA.
We knew there would be a moon-bounce at this party. We knew that Ava and Henry would absolutely love playing in it, as most kids do. We also knew that Ella would most likely want to join in the fun. If SMA had its way, she would not be able to enjoy the jumping fun that every child in the room was enjoying. If SMA had its way, she would sit on the sidelines with wide eyes, wishing she could join the others. If SMA had its way she would be idle as the children she looked upon felt the exhilaration of bouncing, flipping, and soaring through the air. If SMA had its way, she would not be able to enjoy the simple pleasure of childhood.
She was persistent in her desire to go into the moon-bounce. Lindsay and I didn't have to think about it too much in terms of letting her go...we did have to think about how to best hold her so as to give her the best experience she could have. SMA wasn't going to take this away from her.
I was the first one to go with her into the bouncy-heaven. Needless to say, it took considerable effort to hold my own in the "arena" and even more so to keep her body in a comfortable and safe position. We experimented quickly with a few different positions and quickly found a comfort zone.
Her smile was priceless. Her excitement was contagious.
We bounced together. We sat and felt our bodies rocking to the beat of those around us. She got to feel the anti-gravity that so often eludes her.
After a break it was Lindsay's turn to enter the childhood pleasures with Ella. They laughed and played. They forgot for a moment the awful disease that afflicts Ella. They enjoyed the moment for what it was...a childhood moment.
If SMA had its way then Ella would not experience much of the world. Through her determination, her will, and her love of what life does have to offer, she defies SMA every chance she gets.
Take that SMA.
