I sat down next to Ella. She was on the couch, wedged in the corner for support, unable to really move from the spot.  We talked a bit, my iPad on my lap.  We played a game together (Angry Birds). My mail program "dinged" and I received a message from www.curesma.org.  The article was about the current clinical trials that are moving forward these days.  In a nutshell they have made wonderful progress with the intravenous injections of the gene therapy approach!  They are looking forward enthusiastically to the CFS (cerebral-spinal-fluid) injection approach...which has great potential. This isn't really new news in our house.  The SMA Community looks eagerly to the folks heading up this research, our fingers crossed, prayer lifted, and hopes ignited.   This hope...ignited by this research...is what keeps us going day in and day out.  We look to the promise of a horizon void of SMA; a sunrise of the day when this disease no longer robs our chil...