Last month, she was asked to be the cover girl for a Lurie Children's Hospital publication called, "The Child's Doctor". It is a magazine/booklet that comes out quarterly, and the Spring's issue is going to be about SMA, written by Ella's neurologist, Dr. Nancy Kuntz. The publication is distributed to about 10,000 pediatricians, so we are very excited for information about SMA to be given to so many doctors!
Of course, when asked, we were thrilled to have Ella be on the cover (and also on the inside of the publication). We went downtown to Lurie Children's for the photo shoot with Dr. Kuntz and had a great time! And for fun, the photographer even took some pictures with Ava, Henry and me in it as well!
We're looking forward to receiving the publication once it comes out!
This story will appear in the Naperville Sun, our town's local newspaper. Yesterday I was interviewed over the phone by a reporter and she will be interviewing Michael over the phone later this week as well.
Finally, last week I was contacted by our Normal Moments volunteer, Erin, about a story that WGN wants to do on the Normal Moments organization in their TV segment called, "Living Healthy Chicago".
For those of you who aren't familiar with Normal Moments, they are an incredible organization in the Chicago area that provides volunteers to families with children who have special needs. They also help with other things such as finding business sponsors for families at Christmastime and throwing fundraisers to help families with needs for their homes.
The Normal Moments volunteers pretty much do anything you need them to do. Our volunteer, Erin, mostly helps with cleaning and caring for Ella when I have things to do around the house. Erin and Ella share a very special bond.
Back to WGN...when Erin called me last week and said that WGN wants to do a story on Normal Moments, she told me that they would like to feature a family as an example and wondered if we would like to be that family! Without much hesitation, we said yes :)
So tomorrow (Wednesday), the WGN crew will be coming to our house, filming interviews with Erin and our family, and showing a little bit about how Erin helps us. We're a little nervous, but also so excited to be spreading more SMA awareness!
Right now, we don't know exactly when the any of these stories will be published/broadcasted, but we will be sure to let you know when we find out!
