Monday, October 29, 2012

With Bear in Hand...(by Michael)



Scarlett is a friend of Ella's.  They share the same diagnosis.

With her bear in hand, bipap on 24-7, and the love of her family within, Scarlett has fallen ill.

She doesn't usually have her bipap on during her waking hours yet now that she is feeling ill it's with her all day and night, working to keep her breathing steady and true.  

The goal right now is to stave off pneumonia.  It can come so quickly to those affected by SMA...a simple cold, a cough, or a germ floating carelessly through the air becomes an enemy to our children, threatening their very lives.  

Scarlett's mom has reached out for prayers.  She has reached out to all who will hear to keep her darling daughter in their prayers as she and Scarlett struggle...

The season for colds, coughs, and flu is knocking on our doors...it's a time that we face with trepidation and caution.  Kids get colds.  Kids with SMA get more than they bargained for...

Stay strong Scarlett...