I wish I could say Ella is sitting in her diaper only because it's so hot and we are trying to keep her cool.
Not the case.
She's like this because she has just finished throwing up her latest feed...again.
Lindsay and I just looked at each other as Ella let her feed go after an hour of it being finished. A look of defeat washed over our faces.
Ella has not been holding down her feeds very well for quite some time now (weeks). It follows no rhyme or reason. Usually once a day (maybe two) out of the four feeds. We are in contact with several people regarding this matter. The puzzle is complex and frustrating.
The look of defeat on our faces came from the knowledge that we know every bit of nutrition Ella takes in is vital to her...more so than the average person. Her system is already so compromised by SMA that any loss is significant.
I suppose I could go on and on about this one, but really--the look on her face in the picture above says it all...doesn't it?
