Sunday, January 29, 2012

Her Frustration, Our Frustration (by Lindsay)

Ella's play time is becoming more and more difficult. And more and more frustrating.

For all of us.

Her weakness is preventing her from being able to lift most toys (even the small ones). Up until this point, we've helped her.

But she's 1-1/2 years old. And she's decided she no longer wants our help. She wants to do everything by herself (like most toddlers).

But she's not like a typically developing toddler who gets frustrated when they can't reach something up high, or open a cabinet with a childproof lock on it.

She gets frustrated when she can't lift a small container of Play Doh. Or a Matchbox car. Or push hard enough with a crayon for it to actually make a mark on the paper.

And when we try to help her these days, she just gets angry and throws herself down (or her head back if she's in her wheelchair), and then can't get back up, making things even worse.

I don't know how to make play time easier for her. I don't know how to help her without "helping" her.

And I don't know how to let Ava and Henry play with the things they enjoy without it making Ella terribly upset because she wants to do what they do. But can't.

I just don't know how to do this.