We just met with the team and got the official "ok" that Ella can go home today!
Yesterday she was pretty uncomfortable and started developing a fever. But once we did her first formula feed through the g-tube, the fever went away and she started getting back to feeling like her normal self :)
Her feeds have been going very well...she is now up to her full volumes and rates.
It will be nice to get back home and back into the routine again. Things won't be very different after this discharge, the only difference being that her feeds go through the g-tube instead of the ng-tube (which is easier and more convenient anyway).
So unlike Ella's first discharge after the RSV and pneumonia, we won't have a whole new lifestyle to adjust to :)
Here are some pictures and a video showing Ella's new button...
Yesterday she was pretty uncomfortable and started developing a fever. But once we did her first formula feed through the g-tube, the fever went away and she started getting back to feeling like her normal self :)
Her feeds have been going very well...she is now up to her full volumes and rates.
It will be nice to get back home and back into the routine again. Things won't be very different after this discharge, the only difference being that her feeds go through the g-tube instead of the ng-tube (which is easier and more convenient anyway).
So unlike Ella's first discharge after the RSV and pneumonia, we won't have a whole new lifestyle to adjust to :)
Here are some pictures and a video showing Ella's new button...
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| Ella's new "MIC-Key" button (with the extension tube attached for a feed) |
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| The "MIC-Key" button closed (how it is between feeds). |
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| She knows right where her new button is :) |
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| This morning she noticed her belly button has a little "owie" and she said "Uh oh!" (the laproscope went through her belly button during surgery). |
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| Happy girl ready to go home! |
