Reading bedtime stories with Daddy :) |
Ella had a fairly uneventful night, which was great! She woke up a few times but was able to quickly fall back asleep with the help of her nurse "charging" with her :)
Ella has been in a fair amount of pain since the morphine has worn off from the surgery. We've been giving her Tylenol to help ease some of her discomfort. We want to avoid any more morphine if we can, as it will weaken her already fatigued muscles.
She has been on her Bi-PAP non-stop since the surgery was over. Normally she only sleeps with it, but when she was extubated, she was having a little difficulty breathing on her own so they put her on Bi-PAP to assist her chest muscles. She'll try going off of it today to see how she does on her own. But so far, every time we've asked her if she wants to take it off she says "No"...our little smartie knows it helps her :)
So far, Ella has been staying hydrated via IV fluids. Today we will attempt her first feed through her g-tube. We'll start slow with Pedialyte for about 6 hours to see how she tolerates it. If that goes well, we'll slowly transition to her formula.
Right now we're waiting for the ICU team to do their rounds. Once we meet with them, hopefully we'll have a better idea of when we'll get to take Ella home (we're hoping for tomorrow!).
Thank you for keeping Ella (and us) in your thoughts and prayers! We will continue to keep the blog posted with any updates.