Friday, March 18, 2016

Better Every Day! (by Lindsay)

Overall, Ella has had a really good day!

She slept a lot better last night (including a 5 hour stretch!).

This morning the pain team removed her epidural and her Foley catheter was taken out. Michael and I have successfully changed a wet diaper since then :)

We stopped Ella's IV pain meds (Dilaudid) and switched to oral Oxycodone (in her g-tube) and she's been doing fine with the change!

She's continuing to tolerate her bland formula as we increase the rate. She'll be at her normal rate tomorrow morning. At that point, we'll gradually add the remaining ingredients of her formula, making sure she's not experiencing any nausea or vomiting.

If things to continue to progress in the positive direction like they have today, our plan is for Ella to come home on Sunday!

We know that Ella is really starting to feel better because instead of crying in pain, she's crying over silly things...like when her hair gets stuck behind her neck, or when the Disney Junior channel randomly switches to Jeopardy. That's the 5-year-old we're used to ;)

Ella had several visitors today that made her smile A LOT! She really lights up when some of her favorite people come to see her here :) But she is also excited to be home so she can see Ava, Henry, Sasa and her friends, too!

Ella, you impress us with your strength every single day!  Keep it up, Squishy!!

Our Little Fighter
Ella with Gramma
Ella with Mrs. Newell (her physical therapist at Prairie)
Ella with Mrs. Johnson (her kindergarten teacher) and Mrs. S. (her assistant)
Uncle Andy visited yesterday :)
Yesterday Alli Traven brought an AWESOME gift from the 4th grade team at Lincoln (Michael's school)...4 different nightgowns for Ella (she can't wear pants with her cast) each with a matching one for her baby!!